Fundraiser for boy with dangerous medical condition

A mother from Sheerness is raising money for a charity which helped her son. Callie-Leigh Greer, 23, of New Road, is holding a fundraising event for Headstart4Babies which provided a substantial amount of funding towards her son’s medical care.

Callie realised there was a problem with Teddy’s head when he was eight weeks old. The worried family took multiple trips to their GP and were told that it was a common case of “flat-head syndrome” which would get better on its own.

The family later saw three specialists who told them that Teddy was suffering from Brachycephaly and Plagiocephaly. “We had an appointment with a top specialist in London, who said Teddy’s skull has, in essence twisted. It means not only is the back and side of his head completely flat, he also has one side of his face protruding and his ear is completely out of line”. Ms. Greer added that she was “heartbroken” when she found out. “I couldn’t function properly for a few days. I needed a lot of help from my family. This problem can cause developmental delays, so of course I was in hysterics.”

Teddy with his mum Callie-Leigh Greer.

Ms. Greer set up a Go Fund Me page  for her son, who needed to be fitted with a helmet to rectify the problem as soon as possible. The NHS do not currently fund this treatment which costs £2000 and so the family had to rely on donations to pay for the helmet. 

Teddy now has his helmet fitted but needs constant medical check-ups every two to four weeks in London, with each trip costing in excess of £50. The helmet fitting was made possible thanks to a generous donation by Headstart4Babies who raise awareness for the condition and work with families in the same position. Ms. Greer said: “I just want to give back to them, as they helped us to get Teddy’s helmet so I’m so grateful.” She added: “If other parents are concerned, please ask a specialist and not just the NHS. The NHS doesn’t see this problem as severe enough to fund the treatment”.

“Teddy’s Helmet Fundraiser Day” will be taking place from 12pm tomorrow, Saturday 18th January, at the Flying Dutchman in Queenborough. There will be a raffle taking place at 4pm and live music from local artist Mick Kenten from 6pm.  You can also continue to donate to the Go Fund Me page HERE , with all proceeds donated to raise awareness and work towards getting the NHS to fund the treatment. 

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